Broken
p***enger
Join Date: Nov 2012
Location: NYC
Posts: 19,044
venus, I'm so glad you're back with us. We're here to support you. Ask for help here -- I'm so sorry about the bone tumor -- it must be very frightening. What do you mean by treating it holistically? ((venus)) 
Sober since October
Join Date: Oct 2012
Location: In the world in my eyes...Somewhere I've never been before...
Posts: 7,355
((Venus)).
I am so sorry to hear about the tumor. I can't even imagine how scary it can be.
You have all our support and very best positive vibes, and lots of hugs, and warmth of our hearts!
As Ann said - you ARE the glue, even though it may not seem to be true.
You ARE strong even though now you don't believe in this.
The world may be shattering now, but you are still your SELF.
And we love you.
((Stay with us))
Sending you hugs all the way from my part of the world!
I am so sorry to hear about the tumor. I can't even imagine how scary it can be.
You have all our support and very best positive vibes, and lots of hugs, and warmth of our hearts!
As Ann said - you ARE the glue, even though it may not seem to be true.
You ARE strong even though now you don't believe in this.
The world may be shattering now, but you are still your SELF.
And we love you.
((Stay with us))
Sending you hugs all the way from my part of the world!
Member
Join Date: Sep 2013
Location: Somewhere out there
Posts: 2,249
((((Venus)))))) To some it might just be a finger but I know it is much more than that. I want you to know that I am here for you anytime and love you and care deeply about you. I hope you will stay with us and allow us to help you, support you and love you through this.......whatever this turns out to be treatment wise. You have beat this before and you are stronger than you know whether you believe it or not.
Hugs my dearest V.
Hugs my dearest V.
Member
Thread Starter
Join Date: Nov 2012
Location: German Village, Columbus with my love ♥
Posts: 88,509
Thank you love.
This is bone cancer.
I am not having the amputation.
Or the chemo and radiation.
I am also not leaving here again.
I am really ill today.
Constant fevers are zapping all of my energy.
I'm going back to bed for a bit.
But I don't feel alone anymore.
That's a wonderful blessing.
V xx
This is bone cancer.
I am not having the amputation.
Or the chemo and radiation.
I am also not leaving here again.
I am really ill today.
Constant fevers are zapping all of my energy.
I'm going back to bed for a bit.
But I don't feel alone anymore.
That's a wonderful blessing.
V xx
Administrator
Join Date: Apr 2007
Location: Australia
Posts: 211,444
I know the fear. I just got the all clear on something today.
Not to have any of that is your choice.
But please do make sure it's for the right reasons V.
We all love you and we want to see you well.
D
Not to have any of that is your choice.
But please do make sure it's for the right reasons V.
We all love you and we want to see you well.
D
Originally Posted by venuscat 
Thank you love.
This is bone cancer.
I am not having the amputation.
Or the chemo and radiation.
I am also not leaving here again.
I am really ill today.
Constant fevers are zapping all of my energy.
I'm going back to bed for a bit.
But I don't feel alone anymore.
That's a wonderful blessing.
V xx
This is bone cancer.
I am not having the amputation.
Or the chemo and radiation.
I am also not leaving here again.
I am really ill today.
Constant fevers are zapping all of my energy.
I'm going back to bed for a bit.
But I don't feel alone anymore.
That's a wonderful blessing.
V xx
Member
Thread Starter
Join Date: Nov 2012
Location: German Village, Columbus with my love ♥
Posts: 88,509
I'm glad you got the all-clear Dee.
The right reasons....I'm not sure what that means.
I certainly do not want to not be here.
So it's not about giving up or anything.
This is the third tumor in the same place.
The first one was an enchondroma and was benign, but the surgery was very intensive.
It was a long time ago (26 years) and they used liquid bone cement that hardened and eventually was to mesh with my own bone.
The second tumor that was not benign (14 years ago) destroyed the bone cement.
They cannot remove the tumor now without removing the finger.
But this is now secondary cancer, and it would be mandatory to have chemo and radiation treatment after. But the risks of surviving that are not good.
I live on my own. I do not have much of a choice really.
You need a support network to manage all of that.
I would lose my home if I couldn't work and that would not be good.
I have little V to consider.
I need to get mentally strong again, and I need some more money coming in so that I can afford the healthy food and supplements that I need.
I knew if I talked about this here (or anywhere actually) I would end up with people telling me what a stupid decision this is. It's fine, you can tell me that. I expect it. My way of thinking is very unusual; people don't generally say no to their oncologist.
Everyone I have ever known with cancer died from the treatment.
I believe in only just a few years that gene therapy and other treatments will change this. For now, it is what it is. I do not like their treatment options. I am not going that route.
What I know now is that the reason I have been so ill over and over for months, even weakened muscles that caused the hernia, was probably all due to the active tumor.
The hernia is very small, coin-sized, and the specialist at the Alfred said that I got very lucky there. No surgery at this point, and with a bit of luck never.
So now that I have cried bucket loads of tears, it's time to get as strong and healthy as I can so that I can fight this. Again. It took 2 years last time, but the tumor cells changed, and MRI's for 14 years showed no malignancy. Until now.
But I knew....my finger has been hurting badly, and I have pretty much lost the use of it. Can't pick up things like a tea cup anymore or it just drops. I can type tho.
And I feel better because I am not alone now. No poor me crapolla.
So many people here have and are going through so much.
And I feel loved again, which is pretty awesome. ♥
V xx
The right reasons....I'm not sure what that means.
I certainly do not want to not be here.
So it's not about giving up or anything.
This is the third tumor in the same place.
The first one was an enchondroma and was benign, but the surgery was very intensive.
It was a long time ago (26 years) and they used liquid bone cement that hardened and eventually was to mesh with my own bone.
The second tumor that was not benign (14 years ago) destroyed the bone cement.
They cannot remove the tumor now without removing the finger.
But this is now secondary cancer, and it would be mandatory to have chemo and radiation treatment after. But the risks of surviving that are not good.
I live on my own. I do not have much of a choice really.
You need a support network to manage all of that.
I would lose my home if I couldn't work and that would not be good.
I have little V to consider.
I need to get mentally strong again, and I need some more money coming in so that I can afford the healthy food and supplements that I need.
I knew if I talked about this here (or anywhere actually) I would end up with people telling me what a stupid decision this is. It's fine, you can tell me that. I expect it. My way of thinking is very unusual; people don't generally say no to their oncologist.
Everyone I have ever known with cancer died from the treatment.
I believe in only just a few years that gene therapy and other treatments will change this. For now, it is what it is. I do not like their treatment options. I am not going that route.
What I know now is that the reason I have been so ill over and over for months, even weakened muscles that caused the hernia, was probably all due to the active tumor.
The hernia is very small, coin-sized, and the specialist at the Alfred said that I got very lucky there. No surgery at this point, and with a bit of luck never.
So now that I have cried bucket loads of tears, it's time to get as strong and healthy as I can so that I can fight this. Again. It took 2 years last time, but the tumor cells changed, and MRI's for 14 years showed no malignancy. Until now.
But I knew....my finger has been hurting badly, and I have pretty much lost the use of it. Can't pick up things like a tea cup anymore or it just drops. I can type tho.
And I feel better because I am not alone now. No poor me crapolla.
So many people here have and are going through so much.
And I feel loved again, which is pretty awesome. ♥
V xx
Member
Join Date: Jul 2010
Posts: 13,497
OK .... I lost my post.
Just wanted to say that I understand you (((Venus))), and your fear. We are here for you 1000%.
I do know three people, two being children, who have had chemo for some serious stuff and are cured, and doing very well now. I do believe chemo has improved over the last few years? Just some reassurance, in case, sweetie.
I am sorry you are going through this sweetie, but we are here, we are aware now, and you don't have to deal with it without us pestering and loving you and being here for you.
have you gotten several opinions sweetie?
love
chic
Just wanted to say that I understand you (((Venus))), and your fear. We are here for you 1000%.
I do know three people, two being children, who have had chemo for some serious stuff and are cured, and doing very well now. I do believe chemo has improved over the last few years? Just some reassurance, in case, sweetie.
I am sorry you are going through this sweetie, but we are here, we are aware now, and you don't have to deal with it without us pestering and loving you and being here for you.
have you gotten several opinions sweetie?
love
chic
Member
Thread Starter
Join Date: Nov 2012
Location: German Village, Columbus with my love ♥
Posts: 88,509
Thank you chic my love ♥
Fandy asked the same thing...have I gotten any other opinions.
This is a team of docs....there were 4 the other day. Public hospital, and it is interesting for them. Malignant tumors of the hand are rare. So really, there is no need to keep searching for answers.
Every single doctor says the same thing; they have to amputate because there is not enough healthy surrounding bone to work with.
Sorry. Gruesome and awful.
I apologise.
V xx
Fandy asked the same thing...have I gotten any other opinions.
This is a team of docs....there were 4 the other day. Public hospital, and it is interesting for them. Malignant tumors of the hand are rare. So really, there is no need to keep searching for answers.
Every single doctor says the same thing; they have to amputate because there is not enough healthy surrounding bone to work with.
Sorry. Gruesome and awful.
I apologise.
V xx
Member
Join Date: Feb 2010
Location: NJ
Posts: 20,458
Are any of these physicians or orthopaedists that specialize in hand surgery? what are you options if they have to take one finger?
There is an organization that only specializes in hand surgery, it is a subspecialty....You are a board certified ortho first, then you specialize only in the hand.
now I do not know too much about this, other than what I just mentioned but I think it deserves a good search on your part.
will this surgery and loss of one digit stop any spread of it? is the rest of your bone healthy in your hand? is it spreading? just one hand? thankfully it is not in a leg, but can it reappear? I am guessing that you had a full body bone scan and it is hopefully clean except for this. is it hereditary?
(I know I know, shut up with the questions Fandy)
There is an organization that only specializes in hand surgery, it is a subspecialty....You are a board certified ortho first, then you specialize only in the hand.
now I do not know too much about this, other than what I just mentioned but I think it deserves a good search on your part.
will this surgery and loss of one digit stop any spread of it? is the rest of your bone healthy in your hand? is it spreading? just one hand? thankfully it is not in a leg, but can it reappear? I am guessing that you had a full body bone scan and it is hopefully clean except for this. is it hereditary?
(I know I know, shut up with the questions Fandy)
Member
Thread Starter
Join Date: Nov 2012
Location: German Village, Columbus with my love ♥
Posts: 88,509
OK ~ Yes, they are specialists in hand surgery. This is the top hospital in the country.
The surgery if I was to have it is the index finger, right hand.
It is malignant. That's why they require me to start chemo + after surgery.
At this point it hasn't gotten any further than my hand.
Not sure what else to say.
V xx
The surgery if I was to have it is the index finger, right hand.
It is malignant. That's why they require me to start chemo + after surgery.
At this point it hasn't gotten any further than my hand.
Not sure what else to say.
V xx
Currently Active Users Viewing this Thread: 1 (0 members and 1 guests)
