jordan1980

Today my 2 year old son had his appointment at Children's Hospital. For those of you who don't remember he was in the process of being diagnosed with a thyroid problem and was put on meds. I wasen't happy with the doctor we had so we had him referred to a specialist at children's.
Turns out I was right.....the new doctor says that he was misdiagnosed and it is not a thyroid problem at all. It is a pituitary gland (in the brain) problem, most likely a tumor. The new doctor says that this is very serious and we have to get right on it. My son has to go back to children's and have about 5 hours worth of "specified hormone testing," a MRI and a CT. Too add to all that he never needed to be on the meds that the old doctor had him on........and he has been on them for 4 months. (Thank goodness there will be no harm done.)
I am so sad right now, I could barley bring myself to tell recoevring AH, or my family. Everyone is so upset.
Everything has been going so well for me and RAH, we have been goign to councelling, getting along....and now this.
We are all very scared, I have no idea what is going to happen...he is just such a baby!!!!

I am sorry this post really didn't have a point.I just needed to get it out.

minnie

(((Jordan))) (((Jordan's son)))

I am so sorry to hear this. At least the docs are on to it now and he can get the right treatment.

Thinking of you all.

Love

Minnie
xxx

susane1408

I'm so sorry Jordan, my prayers are with you (((((hug)))))
Please don't apologise, we're here for you.
Just tell us anything thats on your mind through this difficult time, you'll always find support and prayers.

best

Your post has a point


My prayers will be that the little one find the healing touch of the Lord in his life and that you find a infilling of His peace that transends all understanding in your own heart.

benefits

Jordan, I'm not sure if I shared this with you before but I was diagnosed with a pituitary tumor last February and after all the testing they found that it was a macro (large) tumor and had to be removed. In May I had the surgery and they removed most of the tumor - from my research I have found that it is almost impossible to remove the entire tumor because of the tiny area they are working in but the remnat that is left is very small and may be shrinking on its own. I was back to work in 4 weeks and I have had no complications since. I do have to follow with blood testing and MRI's every six months but I'm okay. I cannot imagine having to watch my son go through all of this and I'm sorry you have to deal with this but please know that a lot of people, including me, have gone through this same thing and everything was fine. I did a lot of research when I was going through this and the sucess rate on this is very high. Good luck - I will keep you and your son in my thoughts and prayers. If you want to hear more about what I found in my research pm me.

Buster

********{Hugs}}}}}}} to you and your little boy - Hopefully the docs can get the result quickly and take the necessary action - you are in our thoughts and prayers

english alison

when my son gets ill i do a healing on him.you can do it too.put your hands over his head and ask for healing(dosnt have to be to do with god)imagine energy coming down into your head and out through your hands.it does work.keep doing it.it will do you some good too.i hope it all works out ok.like it did for benefits.

Ann

Jordon

Special prayers for the little guy, and for you in the coming days.

Hugs
Ann

Cap3

Your ,dear,son and you are in my prayers.
God Bless,you all.

benefits

I just remembered something else that your doctor may have already told you but in case he didn't I thought this might ease your mind. My doctor told me that 99% of the time pituitary tumors are benign. He said in his 20+ years as a neurosurgeon he has never heard of anyone having a malignant tumor in the pituitary gland. Hopeful that will ease your mind - even if its just a little bit.

cwohio

jordan - i will say an extra prayer for you and your son that everything goes well.

hugs - chris

equus

Jordan - your not being happy with the doc and acting on it may well have saved your son. He is one very lucky lad to have you as a mum.

I really hope things start to improve for him and you now (thanks to you) they know what's actually wrong. Please update us when you can.

journeygal

Oh Jordan I am so sorry you're dealing with this. Poor little guy!

Benefits' posts were very encouraging and I'm sure he'll be just fine.

I'll be praying for you guys.

Hugs,
JG

dax

Sending prayers for your sweet little boy. hugs dax

smoke gets in my eyes

((( Jordan and son!!! )))

Aquiana

((((Jordan)))) ((((Jordan's son))))

I'm so glad you got a second opinion. Sending many many prayers that everything turns out ok. It sounds like you have some promising info.

herewegoagain

Oh Jordan, I'm so terribly sorry. Your post brought tears to my eyes - my son is 20 months old, and I know that if I had to deal with that - it would terrify me and just absolutely break my heart. I really hope everything will be ok - and please come to us for support, it's why we're here. Big hugs to you and your son.

KATIE77

Big hugs to you all. You are in my prayers ((HUGS))

JessicaNAJ

Jordan

Prayers and hugs for you and your little one. We are here for you

jordan1980

I just wanted to thank everyone for their posts. I am feeling better this morning
Everyone here is so very helpful. Benefits, thank you for sharing your story with me it does make me feel better to know that people do pull through this. I did already know that 99% of piuitary tumors are benign (thank goodness!!) I am on the net right now doing ALOT of research.

Thankx for every thing