Thank you all soooo much for all your prayers and comments and hugs!!!! I'm just sooo happy to know what's going on and to know that there's a little glimmer of hope in the future!
In December we had found out that he had lost 60% of his hearing. We opted to have tubes put in to relieve some of the fluids and because they were fairly concerned that he had permanent hearing loss. Well, his hearing is substantially better, but he continues to be in pain. This is really gross, but he's regularly had puss oozing from his ears, or his ears have been gushing blood. He's been through countless antibiotics and decongestants that have all slowed down the infections but none have ever gotten rid of them completely and they come back each time a little harder. Sooooooo..... it's been a looooong road and I'm hoping this will bring the answer!!!!