No experience with it Jen, other than maybe the EDS, but the longer I'm in recovery and practicing the principles, the better I seem to sleep. Being so active and involved in recovery gives me loads of energy during the day and I sleep restfully at night.
Just wanted to say hello to you
and I'm sure that someone will post soon with their experience. It sounds scary to me and I know it's a very real issue, I hope you find the answers you're looking for.