On My Way
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How are you feeling?

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I'm not sure what ails you, and I'm not looking for a public answer if that makes you uncomfortable, but one of the benchmarks of whether I was progressing or not was how often I would have to use my emergency inhaler. It's reached the point where it's rare, but I still carry it around just in case. The fatigue was also part of my deal; when one is having trouble breathing it's hard to be energized. We don't need medical degrees to figure that one out. :-)

I'm not sure what ails you, and I'm not looking for a public answer if that makes you uncomfortable, but one of the benchmarks of whether I was progressing or not was how often I would have to use my emergency inhaler. It's reached the point where it's rare, but I still carry it around just in case. The fatigue was also part of my deal; when one is having trouble breathing it's hard to be energized. We don't need medical degrees to figure that one out. :-)

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As my long dormant asthma has surfaced, although not exacerbated by the serious illnesses you've endured, I have s sense of what you're experiencing and I'm sorry that you're having to go through what you are.
When is your pulmonologist appointment?
When is your pulmonologist appointment?

Discouraging.

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It has been a moving target. I had an appointment for over two weeks ago but was cancelled due to hospital emergencies on the part of the pulmonologist. I 'thought' that I had rescheduled for 5/12th but was contacted by a 'pre-consult' team who eventually gave me an appointment for 5/18th. I received a call today to advise me of a cancellation (and opportunity for an earlier appointment) with another doctor in the practice; when I said I wanted to stick with the original doctor, I was advised that my appointment wasn't with her but with another associate. Soooo, the appointment with the doctor I want (for whom I have three respected recommendations) is 5/21st.
Discouraging.
Discouraging.

Discouraging and frustrating indeed. I understand that the doctors want to make $$, and believe me I'm a capitalist who owns his own business, but too often these medical professionals, certainly not all, lose sight of the fact that while folks like you and me are a patient among many, to us our situation is of paramount importance. I hope you're able to see the doctor you want before the 21st.

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Join Date: Jun 2014
Location: East Coast USA
Posts: 5,700

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Join Date: Jun 2014
Location: East Coast USA
Posts: 5,700

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