Class of July 2013 Part 44
Member
Join Date: Jan 2016
Location: Georgia
Posts: 711
My dear Julyers,
I am sending heartfelt support, caring and love to all of you who are having trials and tribulations.
Snoozy, I am so sorry it is taking so long for Shaun to get a proper diagnosis.
You are handling all of this amazing well. I know it is very hard on you both redoing biopsies, etc. and WAITING. You are in my prayers...
Hugs to you Leshar. I know how difficult anniversaries are.. :-((
Dee, sorting out proper meds is a tricky thing. Glad you are on the right track now.
((((((Suze)))))
Bob, I hope Mrs. Bob is progressing nicely.
Everyone I haven't named, you are an amazing group! Thank you for your kindness to me.
We are hoping for lumbar puncture results tomorrow.
If nothing comes from these results, it's to the infectious disease specialist.
That is all that is left to check out. Personally, I don't think it is any sort of infectious disease as it hasn't shown up in any of the blood work.
Hubby and I are worried because we haven't seen any improvement. Balance is still bad; he fell in the shower. Speech still slurred, bad headaches and confusion comes and goes....I'm trying to be optimistic.
Croutie
I am sending heartfelt support, caring and love to all of you who are having trials and tribulations.
Snoozy, I am so sorry it is taking so long for Shaun to get a proper diagnosis.
You are handling all of this amazing well. I know it is very hard on you both redoing biopsies, etc. and WAITING. You are in my prayers...
Hugs to you Leshar. I know how difficult anniversaries are.. :-((
Dee, sorting out proper meds is a tricky thing. Glad you are on the right track now.
((((((Suze)))))
Bob, I hope Mrs. Bob is progressing nicely.
Everyone I haven't named, you are an amazing group! Thank you for your kindness to me.
We are hoping for lumbar puncture results tomorrow.
If nothing comes from these results, it's to the infectious disease specialist.
That is all that is left to check out. Personally, I don't think it is any sort of infectious disease as it hasn't shown up in any of the blood work.
Hubby and I are worried because we haven't seen any improvement. Balance is still bad; he fell in the shower. Speech still slurred, bad headaches and confusion comes and goes....I'm trying to be optimistic.
Croutie
Member
Join Date: Feb 2014
Location: East Coast USA
Posts: 120,870
Originally Posted by SnoozyQ 
Hugs to you Suze xx
Shaun's oncologist said that they found a large node on his chest that needs investigating so he has to go in for yet another chest X-ray tomorrow. He also has one next to his windpipe and one near his heart.
He is not going to do the biopsy again as the other 3 failed. They will either use a procedure where a tube goes up his nose with a camera or a more invasive one if that doesn't work.
Omg this is exhausting. Just when we are starting to think it can't be as bad as we were thinking , we get hit with this. I feel sick. So does Shaun , the P.E.T scan is very accurate.
The oncologist said, right...we are going full throttle til we find out what is going on here. He still believes its lymphoma but the other findings have thrown a cat amongst the pigeons.
Well he's right, he's made the apt for tomorrow and then again the day after that to see him.
Shaun's just left for his night shift , he's very quiet, I told him not to worry & he said how can I not when I see you this worried for the first time.
It's hard to hold your emotions in when you get hit left, right and centre.
Hopefully it's not as bad as I'm imagining .
We will be ok, I feel better putting it out here and getting it off my chest, so thanks for being here everyone and I'm sorry to put up non so happy posts at times.
Love you all xxx
Shaun's oncologist said that they found a large node on his chest that needs investigating so he has to go in for yet another chest X-ray tomorrow. He also has one next to his windpipe and one near his heart.
He is not going to do the biopsy again as the other 3 failed. They will either use a procedure where a tube goes up his nose with a camera or a more invasive one if that doesn't work.
Omg this is exhausting. Just when we are starting to think it can't be as bad as we were thinking , we get hit with this. I feel sick. So does Shaun , the P.E.T scan is very accurate.
The oncologist said, right...we are going full throttle til we find out what is going on here. He still believes its lymphoma but the other findings have thrown a cat amongst the pigeons.
Well he's right, he's made the apt for tomorrow and then again the day after that to see him.
Shaun's just left for his night shift , he's very quiet, I told him not to worry & he said how can I not when I see you this worried for the first time.
It's hard to hold your emotions in when you get hit left, right and centre.
Hopefully it's not as bad as I'm imagining .
We will be ok, I feel better putting it out here and getting it off my chest, so thanks for being here everyone and I'm sorry to put up non so happy posts at times.
Love you all xxx
The emotional anguish and frustration must be excruciating.
Love and prayers.
Member
Join Date: Feb 2014
Location: East Coast USA
Posts: 120,870
Originally Posted by Mags1
JulyersMassive hugs and prayers for our Suze.
Leshar, sounds a great idea. It is a long drive but you could take a picnic with you or have lunch on your journey? Whatever you decide, let it be enjoyable experience for you.
On your 60 th birthday in December, Or how about taking your husbands wine on your 60 th with a special picnic, giving him the wine and enjoying your special picnic . Or is that not appropriate.x
The radiator is part of the French doors project, it's in the way! Humph!
Dee, I've gotta use that! 'A little padding helps with falls' mwaaahhhh,
Hugs and prayers to all Julyiers,
Your room renovation is going to be so cool - I just love French doors, too.
Member
Join Date: Feb 2014
Location: East Coast USA
Posts: 120,870
Originally Posted by SnoozyQ
Hugs to you Suze xx
Shaun's oncologist said that they found a large node on his chest that needs investigating so he has to go in for yet another chest X-ray tomorrow. He also has one next to his windpipe and one near his heart.
He is not going to do the biopsy again as the other 3 failed. They will either use a procedure where a tube goes up his nose with a camera or a more invasive one if that doesn't work.
Omg this is exhausting. Just when we are starting to think it can't be as bad as we were thinking , we get hit with this. I feel sick. So does Shaun , the P.E.T scan is very accurate.
The oncologist said, right...we are going full throttle til we find out what is going on here. He still believes its lymphoma but the other findings have thrown a cat amongst the pigeons.
Well he's right, he's made the apt for tomorrow and then again the day after that to see him.
Shaun's just left for his night shift , he's very quiet, I told him not to worry & he said how can I not when I see you this worried for the first time.
It's hard to hold your emotions in when you get hit left, right and centre.
Hopefully it's not as bad as I'm imagining .
We will be ok, I feel better putting it out here and getting it off my chest, so thanks for being here everyone and I'm sorry to put up non so happy posts at times.
Love you all xxx
Shaun's oncologist said that they found a large node on his chest that needs investigating so he has to go in for yet another chest X-ray tomorrow. He also has one next to his windpipe and one near his heart.
He is not going to do the biopsy again as the other 3 failed. They will either use a procedure where a tube goes up his nose with a camera or a more invasive one if that doesn't work.
Omg this is exhausting. Just when we are starting to think it can't be as bad as we were thinking , we get hit with this. I feel sick. So does Shaun , the P.E.T scan is very accurate.
The oncologist said, right...we are going full throttle til we find out what is going on here. He still believes its lymphoma but the other findings have thrown a cat amongst the pigeons.
Well he's right, he's made the apt for tomorrow and then again the day after that to see him.
Shaun's just left for his night shift , he's very quiet, I told him not to worry & he said how can I not when I see you this worried for the first time.
It's hard to hold your emotions in when you get hit left, right and centre.
Hopefully it's not as bad as I'm imagining .
We will be ok, I feel better putting it out here and getting it off my chest, so thanks for being here everyone and I'm sorry to put up non so happy posts at times.
Love you all xxx
Her's was a form of non-Hodgkin's lymphoma. She is now cancer-free and considered cured. Remember Rituxin.
Member
Join Date: Feb 2014
Location: East Coast USA
Posts: 120,870
Originally Posted by LuLu13
Hi all, wrote a long post and lost it, argh! Don't have time to retype as I have an exterminator coming, horrible ant problem, and then need to head to work. Still sober, just getting through one day at a time.
Snooz, I am thinking of you and Shaun and praying for the best.
Leshar, I like the idea of pouring the wine by the grave. I also admire your taking the high moral ground with your friend.
Bob, thinking of you.
Dee, hope you feel better soon. You are a rock.
Gilmer, Leigh, Croiss, Mags, Croutie, Suze, hope all is well. Ladybug where are you?
Sorry if I forgot anyone, not intentional, in a rush. Always thinking of you all and wishing you the best.
Snooz, I am thinking of you and Shaun and praying for the best.
Leshar, I like the idea of pouring the wine by the grave. I also admire your taking the high moral ground with your friend.
Bob, thinking of you.
Dee, hope you feel better soon. You are a rock.
Gilmer, Leigh, Croiss, Mags, Croutie, Suze, hope all is well. Ladybug where are you?
Sorry if I forgot anyone, not intentional, in a rush. Always thinking of you all and wishing you the best.
Hope that the exterminator can put a end to the ant problem.
Not sure but Ladybug may be on vacation.
Member
Join Date: Feb 2014
Location: East Coast USA
Posts: 120,870
Originally Posted by SnoozyQ
Can't sleep 
You're right Mags, we do come out of it the other side somehow. Xxx
Ladybug how about a post from you darling girl. I'm really missing you.
How's the girlybugs going ? It doesn't matter what the reason is , I just miss your posts every day xxx hopefully see you today even if you just pop in for a quick hello
I have busy brain ! I hate trying to sleep but then busy brain takes over .....grrrrrr
You're right Mags, we do come out of it the other side somehow. Xxx
Ladybug how about a post from you darling girl. I'm really missing you.
How's the girlybugs going ? It doesn't matter what the reason is , I just miss your posts every day xxx hopefully see you today even if you just pop in for a quick hello
I have busy brain ! I hate trying to sleep but then busy brain takes over .....grrrrrr
Member
Join Date: Feb 2014
Location: East Coast USA
Posts: 120,870
Originally Posted by Croutie
My dear Julyers,
I am sending heartfelt support, caring and love to all of you who are having trials and tribulations.
Snoozy, I am so sorry it is taking so long for Shaun to get a proper diagnosis.
You are handling all of this amazing well. I know it is very hard on you both redoing biopsies, etc. and WAITING. You are in my prayers...
Hugs to you Leshar. I know how difficult anniversaries are.. :-((
Dee, sorting out proper meds is a tricky thing. Glad you are on the right track now.
((((((Suze)))))
Bob, I hope Mrs. Bob is progressing nicely.
Everyone I haven't named, you are an amazing group! Thank you for your kindness to me.
We are hoping for lumbar puncture results tomorrow.
If nothing comes from these results, it's to the infectious disease specialist.
That is all that is left to check out. Personally, I don't think it is any sort of infectious disease as it hasn't shown up in any of the blood work.
Hubby and I are worried because we haven't seen any improvement. Balance is still bad; he fell in the shower. Speech still slurred, bad headaches and confusion comes and goes....I'm trying to be optimistic.
Croutie
I am sending heartfelt support, caring and love to all of you who are having trials and tribulations.
Snoozy, I am so sorry it is taking so long for Shaun to get a proper diagnosis.
You are handling all of this amazing well. I know it is very hard on you both redoing biopsies, etc. and WAITING. You are in my prayers...
Hugs to you Leshar. I know how difficult anniversaries are.. :-((
Dee, sorting out proper meds is a tricky thing. Glad you are on the right track now.
((((((Suze)))))
Bob, I hope Mrs. Bob is progressing nicely.
Everyone I haven't named, you are an amazing group! Thank you for your kindness to me.
We are hoping for lumbar puncture results tomorrow.
If nothing comes from these results, it's to the infectious disease specialist.
That is all that is left to check out. Personally, I don't think it is any sort of infectious disease as it hasn't shown up in any of the blood work.
Hubby and I are worried because we haven't seen any improvement. Balance is still bad; he fell in the shower. Speech still slurred, bad headaches and confusion comes and goes....I'm trying to be optimistic.
Croutie
My many prayers continue, sweetheart. :hugs:
Member
Join Date: Apr 2013
Location: Canada
Posts: 3,994
Hello Snoozy, hope you got to sleep finally.
I am coming off my benzo. Down to half my prior dose at 0.5mg of lorazepam at night now. Very nervous about how I will fare reducing it further. I've been off my antidepressant and meds for arthritis for two months, but no sign of my hair stopping thinning/falling. The dermatologist wouldn't see me, just said to start rogaine. My psych said to give it 3 months. I see him on June 6 and will see how to go next with the benzo. I'm upset every time I wash my hair. It all just goes down the drain.
The director of the last play emailed yesterday and asked if I wanted to do props and or read for a role for his summer play. He writes a summer play every year and it's staged at a converted barn in the country. It's a small venue about 40 seats or so. The meeting is tonight. I said I would love to read. But I signed up for a theatre course in August which would clash with the run of the play. But, I would much rather do a play, even if it's a very small part. But even though I'm good at accents, I can't do a Canadian/ mid Atlantic accent! I can do regional Canadian and American accents, not just the generic, can't think what to call it, North American accent. Love to do an Australian accent! It's about Canada's 150 th birthday this year, July 1, I haven't seen a script. Feeling out of sorts, the grant lady would be mad at me if I said I wasn't going to do the course now, although there's no final word as yet on whether I got it or not. I have till end of June to get back the money I've already paid. Also wonder why the guy emailed me at the last minute. Just sort of lonely. I've made my decision about my cheating friend, but it's lonely still, but I won't change my mind.
I am coming off my benzo. Down to half my prior dose at 0.5mg of lorazepam at night now. Very nervous about how I will fare reducing it further. I've been off my antidepressant and meds for arthritis for two months, but no sign of my hair stopping thinning/falling. The dermatologist wouldn't see me, just said to start rogaine. My psych said to give it 3 months. I see him on June 6 and will see how to go next with the benzo. I'm upset every time I wash my hair. It all just goes down the drain.
The director of the last play emailed yesterday and asked if I wanted to do props and or read for a role for his summer play. He writes a summer play every year and it's staged at a converted barn in the country. It's a small venue about 40 seats or so. The meeting is tonight. I said I would love to read. But I signed up for a theatre course in August which would clash with the run of the play. But, I would much rather do a play, even if it's a very small part. But even though I'm good at accents, I can't do a Canadian/ mid Atlantic accent! I can do regional Canadian and American accents, not just the generic, can't think what to call it, North American accent. Love to do an Australian accent! It's about Canada's 150 th birthday this year, July 1, I haven't seen a script. Feeling out of sorts, the grant lady would be mad at me if I said I wasn't going to do the course now, although there's no final word as yet on whether I got it or not. I have till end of June to get back the money I've already paid. Also wonder why the guy emailed me at the last minute. Just sort of lonely. I've made my decision about my cheating friend, but it's lonely still, but I won't change my mind.
Member
Join Date: Apr 2013
Location: Canada
Posts: 3,994
Oh, dear Croutie, I really hope the LP will lead to a diagnosis. You must be so worried. Keep pushing for answers. Just recently finished Brain on Fire, by Susannah Cahalan where she had a rare brain autoimmune encephalitis that mimicked a psychotic illness. She had good family support and they kept pushing the doctors, wouldn't believe she should just languish in a psych ward.
Same goes for you and your dear Shaun, Snoozy, don't be fobbed off by uppity doctors! Your sons illness does not sound like a conversion disorder to me, Croutie.
Praying you get answers soon.
Same goes for you and your dear Shaun, Snoozy, don't be fobbed off by uppity doctors! Your sons illness does not sound like a conversion disorder to me, Croutie.
Praying you get answers soon.
Member
Join Date: Feb 2014
Location: East Coast USA
Posts: 120,870
Originally Posted by Leshar
Hello Snoozy, hope you got to sleep finally.
I am coming off my benzo. Down to half my prior dose at 0.5mg of lorazepam at night now. Very nervous about how I will fare reducing it further. I've been off my antidepressant and meds for arthritis for two months, but no sign of my hair stopping thinning/falling. The dermatologist wouldn't see me, just said to start rogaine. My psych said to give it 3 months. I see him on June 6 and will see how to go next with the benzo. I'm upset every time I wash my hair. It all just goes down the drain.
The director of the last play emailed yesterday and asked if I wanted to do props and or read for a role for his summer play. He writes a summer play every year and it's staged at a converted barn in the country. It's a small venue about 40 seats or so. The meeting is tonight. I said I would love to read. But I signed up for a theatre course in August which would clash with the run of the play. But, I would much rather do a play, even if it's a very small part. But even though I'm good at accents, I can't do a Canadian/ mid Atlantic accent! I can do regional Canadian and American accents, not just the generic, can't think what to call it, North American accent. Love to do an Australian accent! It's about Canada's 150 th birthday this year, July 1, I haven't seen a script. Feeling out of sorts, the grant lady would be mad at me if I said I wasn't going to do the course now, although there's no final word as yet on whether I got it or not. I have till end of June to get back the money I've already paid. Also wonder why the guy emailed me at the last minute. Just sort of lonely. I've made my decision about my cheating friend, but it's lonely still, but I won't change my mind.
I am coming off my benzo. Down to half my prior dose at 0.5mg of lorazepam at night now. Very nervous about how I will fare reducing it further. I've been off my antidepressant and meds for arthritis for two months, but no sign of my hair stopping thinning/falling. The dermatologist wouldn't see me, just said to start rogaine. My psych said to give it 3 months. I see him on June 6 and will see how to go next with the benzo. I'm upset every time I wash my hair. It all just goes down the drain.
The director of the last play emailed yesterday and asked if I wanted to do props and or read for a role for his summer play. He writes a summer play every year and it's staged at a converted barn in the country. It's a small venue about 40 seats or so. The meeting is tonight. I said I would love to read. But I signed up for a theatre course in August which would clash with the run of the play. But, I would much rather do a play, even if it's a very small part. But even though I'm good at accents, I can't do a Canadian/ mid Atlantic accent! I can do regional Canadian and American accents, not just the generic, can't think what to call it, North American accent. Love to do an Australian accent! It's about Canada's 150 th birthday this year, July 1, I haven't seen a script. Feeling out of sorts, the grant lady would be mad at me if I said I wasn't going to do the course now, although there's no final word as yet on whether I got it or not. I have till end of June to get back the money I've already paid. Also wonder why the guy emailed me at the last minute. Just sort of lonely. I've made my decision about my cheating friend, but it's lonely still, but I won't change my mind.
My vote is to do what will you make the happiest.
Mid-Atlantic ain't all that hard, hon.
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