Authenticity II
Adventures In SpaceTime
Thread Starter
Join Date: Jun 2008
Location: Ottawa, Canada
Posts: 5,827
Sorry guys. I'm in emerge overnight so far. Water has been discovered in my lungs. Not sure of the exact cause as yet. I can't talk much just now sorry.
I'm still strong!!
I'm still strong!!
Member
Join Date: Dec 2012
Location: Melbourne, Victoria Australia
Posts: 1,202
No need to talk now Robby.
I've heard the Last Post played and various pipers' laments all through today (our ANZAC commemorations, wall to wall and very moving). Not planning on playing it for you just yet, pet.
Much love to you and Melissa,
xx
Vic
I've heard the Last Post played and various pipers' laments all through today (our ANZAC commemorations, wall to wall and very moving). Not planning on playing it for you just yet, pet.
Much love to you and Melissa,
xx
Vic
Adventures In SpaceTime
Thread Starter
Join Date: Jun 2008
Location: Ottawa, Canada
Posts: 5,827
Thanks everybody for the thoughts, prayers, good wishes, and everything. 
I'm back home now from emerge about an hour or so I guess. So, diagnosis on discharge is congestive heart failure. There are many reasons for failure. With congestive, this indicates fluid build up in the body, usually leaked out water in the lungs, and pooling around my leg and foot. The heart compensates by beating faster since normal beats are slowed by moving so much volume. The rest of the body reacts as if there has been blood loss, because the blood is now thinned with the water, so the kidneys slow urination. Not a good cycle.
For me, my internist physician, himself not working out of a hospital but out of the many insurance approved private clinics around Ontario, he just a month and change ago said I didn't have much to worry about immediately - much more so 2 years from now. Yeah, well. Seriously wrong diagnosis. He was dismissed by me at that same visit, because he talked how I would likely survive my first attack or stroke. I demanded an actual diagnosis of my present heart health to back up his findings or stop depressing me. He assured me I did not as yet have heart disease. Both him and I knew I was done with him, and we would never meet again with me under his care. I no longer take any of his proscribed medications. He may have been just on the edge of heart failure, but looks like he was waiting for something clear to become manifest. This could have been diagnosed earlier with a specialist with more abilities, skills, and an abundance of transparency . So now, I'll be receiving a quick referral, I expect, to a heart specialist from my Cancer team of which I'll have my first meeting with my medical oncologist (chemo) Monday afternoon. They will have a full team conference on Monday morning. I'll update you guys.
That is three doctors and one whole team I've burned through these past 12 months trying to sort out these progressive complications started to trend in early 2014.
The PET scan itself went well. Under three hours prep to finish. It ended being like a CT scan, except its following how radio-active sugar I ingested lights up any cancer cells. Cancer loves sucrose. So we gave it a wonderful sweet and sugary kiss yesterday morning, lol. Well worth it, imo. Now the team has complete eyes-on-target computerized images to eradicate my cancers. The next PET scan is in 5 weeks.
Sorry guys. I sure wish I didn't have this heart failure complication added. I'm as yet unsure what possible consequences this has for my cancer treatments, which have already been set to be highly aggressive. I'm full hope I'll be wholly informed in my Monday meeting. I've been told to re-visit emerge should my breathing become once again difficult, as the fluid the drained from my lungs could easily return in as little as a few days. How grand, eh?
I'm still strong in my psyche, my spirit is well and good. I gotta say though, I'm now ******* getting angry, yeah? I'm not in despair, but I have seen a vulture or two in my day dreams, if you follow.
Tears help as much as anything.
Love and friends.
I'm back home now from emerge about an hour or so I guess. So, diagnosis on discharge is congestive heart failure. There are many reasons for failure. With congestive, this indicates fluid build up in the body, usually leaked out water in the lungs, and pooling around my leg and foot. The heart compensates by beating faster since normal beats are slowed by moving so much volume. The rest of the body reacts as if there has been blood loss, because the blood is now thinned with the water, so the kidneys slow urination. Not a good cycle.
For me, my internist physician, himself not working out of a hospital but out of the many insurance approved private clinics around Ontario, he just a month and change ago said I didn't have much to worry about immediately - much more so 2 years from now. Yeah, well. Seriously wrong diagnosis. He was dismissed by me at that same visit, because he talked how I would likely survive my first attack or stroke. I demanded an actual diagnosis of my present heart health to back up his findings or stop depressing me. He assured me I did not as yet have heart disease. Both him and I knew I was done with him, and we would never meet again with me under his care. I no longer take any of his proscribed medications. He may have been just on the edge of heart failure, but looks like he was waiting for something clear to become manifest. This could have been diagnosed earlier with a specialist with more abilities, skills, and an abundance of transparency . So now, I'll be receiving a quick referral, I expect, to a heart specialist from my Cancer team of which I'll have my first meeting with my medical oncologist (chemo) Monday afternoon. They will have a full team conference on Monday morning. I'll update you guys.
That is three doctors and one whole team I've burned through these past 12 months trying to sort out these progressive complications started to trend in early 2014.
The PET scan itself went well. Under three hours prep to finish. It ended being like a CT scan, except its following how radio-active sugar I ingested lights up any cancer cells. Cancer loves sucrose. So we gave it a wonderful sweet and sugary kiss yesterday morning, lol. Well worth it, imo. Now the team has complete eyes-on-target computerized images to eradicate my cancers. The next PET scan is in 5 weeks.
Sorry guys. I sure wish I didn't have this heart failure complication added. I'm as yet unsure what possible consequences this has for my cancer treatments, which have already been set to be highly aggressive. I'm full hope I'll be wholly informed in my Monday meeting. I've been told to re-visit emerge should my breathing become once again difficult, as the fluid the drained from my lungs could easily return in as little as a few days. How grand, eh?
I'm still strong in my psyche, my spirit is well and good. I gotta say though, I'm now ******* getting angry, yeah? I'm not in despair, but I have seen a vulture or two in my day dreams, if you follow.
Tears help as much as anything.
Love and
friends.
Member
Join Date: Jun 2014
Posts: 2,775
Originally Posted by RobbyRobot 
...I'm still strong in my psyche, my spirit is well and good. I gotta say though, I'm now ******* getting angry, yeah? I'm not in despair, but I have seen a vulture or two in my day dreams, if you follow.
I got upset just reading your post!
p***enger
Join Date: Nov 2012
Location: NYC
Posts: 19,042
Robby, you're made of flesh and blood and gold and steel. All the good that's in you is shining through these terrible experiences.
Please give Melissa a hug from me. She'll enjoy it more if you deliver it.
Please give Melissa a hug from me. She'll enjoy it more if you deliver it.
...holds the key
Join Date: Dec 2014
Location: Texas
Posts: 7,065
((Robby)) I'm so sorry to hear about this complication! I know you're strong......tears and a little righteous indignation (or just some good old fashioned anger) don't negate that one bit.
I'm with you and Melissa in spirit and sending loads of hugs and support your way.
Xoxo
I'm with you and Melissa in spirit and sending loads of hugs and support your way.
Xoxo
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