I'm glad things are going okay, Davey. While the trend is for it to get worse, and at the risk of sounding Pollyannaish, as the years go by the chances of a meaningful treatment increase. I have a close relative with a very rare genetic disease that should have killed him years ago but each time one treatment is exhausted a new one has been developed. I think he's out of the woods now.
At any rate, take the good while it lasts. This applies equally to us all!
