I really should start a new thread but it seems the opportunity is been and gone now lol.
I'm definitely better. The steroids have majorly reduced my inflammation. I still have the various cysts which pop up and have to be dealt with but the general degree of inflammation is greatly reduced. I've been able to cut my pain meds in half, although this varies day by day and I am in charge of tailoring my pain medication in that respect. I can usually tell when I wake up how bad a day is going to be, and if I'm going to do more than usual I take some before I take part in whatever it is I am doing to preempt what is to come, so that is working out well.
I know ultimately my condition will get worse, it's just how it goes but right now I've seen a big improvement with this new treatment. My doctor(s) are keeping an eye on my blood tests as my liver has shown an increase in detectable enzymes due to the steroids, and my kidney function is slightly affected but it's a minor increase in both cases so I'm able to continue with the treatment as it is.
I hope everyone else is doing well.