help my dr. screwed me big time

[nevetland]

my new pain dr. put me on a 1/10th of 1 mg of naltrexone to supposedly make the oxycodone i have been on for 3 years work better. i had no idea it was an opiate blocker nor did i know that this was a new undocumented procedure. after 3 weeks of taking it twice a day i had severe reaction whenever i take oxy. shingle type nerve pains, nausea, total exhaustion, severe agitation and confusion. that is if i take a small dose of oxy. if i take my regular 40 mg dose twice a day than i get severe sciatica pain and severe nausea throwing up. she said it would go away but its not. its been 3.5 weeks since i took any minidose of naltrexone. my dr. says she's never seen this reaction and says we are in unchartered waters. does'nt know what to do. i took my wife and went and saw the dr. two days ago. this time the dr. acted like i was crazy , said the naltrexone could not be in my system and would not even listen to me. ordered a psych exam! ridiculous. than she said i could just tone down and get off oxy anytime i want no sweat. ( three weeks earlier she had told me not to use suboxone because it was too much like naltrexone.) than she said well you were off oxycodone for 5 days before i gave you the naltrexone!!!!!!!! i told her "what in the hell are you talking about" no reply. she is just worried about being sued for malpractice-that is all she cares about. i doubt if i could prove this even if i wanted to. all i want is for all the horrible symptoms to stop and for the oxy to work again or to somehow get off oxy without any suboxone etc. help. worse yet , when i tried to take a xxnax to help with the aggitation it gave me nerve pain all through my body! she has screwed up my nerve receptors in my brain! it won't stop. called a suboxone guy and they wisely said it is too complicated and mysterious for them to help me. i would be too afraid to take any suboxone but i know that i can't get off oxy on my own. afraid to even use valium. i am severely addicted and never had any problem with oxy before this new dr. gave me the super mini dose of naltrexone. no dr. knows anything to do and i am suffering. cannot walk well. have had chronic pain from back surgery and other damage for 7.5 years. there is no way out and no one has any knowlege of this. called pharmacist, my regular md., famous dr. in l.a. nobody knows anything. i am freakin.

[Sugah]

I'm guessing you couldn't find the thread you started on this topic a few days ago. I bumped it up so that you can read the replies. Unfortunately, I have no suggestions for you. I wish you well.

Peace & Love,
Sugah

[nodrinkingzone]

Hi nevetland, I also don't know what advice to offer, so i will just say - good luck getting this sorted, those drugs are powerful stuff alright.

Have you considered getting in touch with research arms at universities etc.? They may have more answers for you, I'm not sure how you would go about it but certainly there are universities that are attached to hospitals across the world - perhaps that's an idea?

I'm sorry you're in pain, and I'm sorry that a Dr caused it. Good luck with your struggle, and all the best for a speedy recovery.

ndz

[exjunky]

This is a medical question so we're not qualified to assist but here are three simple facts that I think are uncontroversial:

1. Naltrexone induces withdrawal symptoms in people who are addicted to opiates; it's extremely unpleasant for people to consume while they are addicted to opiates.

2. Suboxone contains Naloxone (Narcan) which is a lot like Naltrexone; they put this in there to discourage junkies from injecting themselves with the drug. Subutex however does not contain Narcan. Both contain buprenephrine, the active ingredient.

3. Some people are allergic to Naltrexone.

I hope that helps you in some way, but don't try to diagnose yourself based on discussion forum banter.

[nodrinkingzone]

Originally Posted by exjunky

This is a medical question so we're not qualified to assist but here are three simple facts that I think are uncontroversial:

1. Naltrexone induces withdrawal symptoms in people who are addicted to opiates; it's extremely unpleasant for people to consume while they are addicted to opiates.

2. Suboxone contains Naloxone (Narcan) which is a lot like Naltrexone; they put this in there to discourage junkies from injecting themselves with the drug. Subutex however does not contain Narcan. Both contain buprenephrine, the active ingredient.

3. Some people are allergic to Naltrexone.

I hope that helps you in some way, but don't try to diagnose yourself based on discussion forum banter.

That's very sensible, exjunky. I think our friend nevetland is here because the Doctor has misdiagnosed and/or doesn't know what's going on, and obviously nevetland can't even get an official diagnosis.

Keep diggin for an answer, nevetland.

[nevetland]

thank you so much to any and all who can help me through this hell.

[tw33k]

There's only one result from giving a person on oxys naltrexone. And that is instant withdrawl.
Get ur records and change doctors!
I hate incompentent doctors

[Pete The Addict]

Originally Posted by tw33k

There's only one result from giving a person on oxys naltrexone. And that is instant withdrawl.
Get ur records and change doctors!
I hate incompentent doctors

wrong.

The Low Dose Naltrexone Homepage

There is a new experimental phase of naltrexone for many immune related diseases. I would however consider it gross oversight for a doc to prescribe both naltrexone and oxy at the same time, since the two drugs are antagonistic to eachother.

[tw33k]

Pete...first u say I'm wrong. Then u point to a page that is totally irrelevant. Then you agree with me.
Bottom line is the poor dude has been screwed and needs a new doctor to treat him properly.

[St_Kurt]

I can't even fathom what's going on here.

Let's just say that the math isn't adding up. What you are describing is completely physiologically impossible. Naltrexone has such a short half life that when it is used to reverse acute opiate overdose (like in an emergency room) multiple doses must be given over time or the reversal will "run out" and the patient will return to a state of overdose. Not to mention that it takes high doses of both naltrexone and an opiate to create a painful "instant withdrawal". In controlled situations when appropriate matched dosing is used (such as in the OR, when opiates are used as a pre-medication for anesthetic induction and then reversed), there is very little reaction. At .1 mg of naltrexone, one could "overpower" the effect with even a low dose of an opiate. The Xanax response doesn't make any sense either as benzodiazepines involve completely different receptors than those affected by opiates or naltrexone.

Something in your story must be missing because it makes NO SENSE the way it is.

I think your best bet is to find a local, uninvolved physician and tell the absolute truth about your history and current situation because no doctor in their right mind would prescribe an opiate reversal agent to make an opiate more effective. I know doctors make mistakes sometimes, but this is SO elementary that it is literally impossible. Something else must be going on that isn't included in your posts here.

It's not that I don't believe the poster is having a bad situation with their doctor, I just think that there is more to it than what is being told. And that alone is why people can't give medical advice on the internet. My impression (for what it's worth) is that the prescribing doctor might not have had all the facts either and the result is that the poster is now having difficulties because of it.

As like a mini-PSA: Please be honest with your doctor. Without a full history they CAN make mistakes. Give them what they need to get you well. This post is actually stressing me out because I'm imagining myself in this situation trying to do the right thing for a patient and being unable to because I'm missing vital pieces of information. Medicine is a partnership.

I wish you the best of luck.
~SK

[exjunky]

Originally Posted by St_Kurt

Something in your story must be missing because it makes NO SENSE the way it is.

That's what I was thinking.

Coincidences happen. If you start to take a new pill and suddenly come down with migraine headaches you believe those two things have to be related, but it doesn't have to be. For all you know you would have acquired those symptoms even if you hadn't taken the pill.

If he said that he felt better once he stopped the naltrexone I would speculate that he has an allergy to it. But 3 weeks later? It's madness to say that it's the naltrexone. That would be like somebody saying "I ate a Vicodin and three weeks later I'm still high." It's pharmacologically impossible. The only substances that last that long in the human body are toxins, heavy metals, etc.

I think the best guess on the table is (unfortunately) that some new symptom has cropped up. Where's House M.D. when you need him?

[tw33k]

Where's House M.D. when you need him?[/quote]

lmao. He'd prolly give him a bottle of vicoden

[angelgirl]

nevetland,, I am sorry you are struggling so. I believe you should get on the telephone, and don't stop calling people, until you find someone who can help you, just because you had a bad doctor, doesn't mean they are all bad, and just because one sub doctor doesn't know what to do, maybe you can find one that will. Or maybe a different pharmacist. I would just keep calling. I also think that it was good advise to call a

research arms at universities

..

If you are suffering, then why stop looking. We don't know if this will just go away, even those of us that are on sub, or naltrexone. But there has to be a doctor out there that can help you.. Keep calling.

I will be praying for you..
Keep us posted if you can..

Becky