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|05-03-2012, 01:00 PM||#1 (permalink)|
Join Date: Apr 2012
Location: New Jersey
So glad I found you!!
What a relief. There are others of you out there dealing with the same stuff as me. When I was first diagnosed with Fbromyalgia 10 years ago I thought I was alone and it was so comforting to know there were others like me. My rheumatologist was considered a "good fibro doc" but all he did for me was prescribe me a myriad of narcotics, benzos and muscle relaxers till I finally couldnt function any more and had to go to detox and rehab to deal with my addictions. Changing my attitudes about how I wanted to live my life hen I was diagnosed with Fibro was really hard, but having to deal with it sober feals near impossibl. And somehow the feelings of rejection I get from those that dont even try to understand are so much more hurtful. I really need people in my situation to talk to about how to cope with all of this. Things were ok for the 1st 6 months but the fibro has taken over in the last 1 1/2 months and I dont know what to do. I can barely get to the bathroom. How can I get to meetings?? Please..any advise is so welcome..
|05-03-2012, 01:49 PM||#2 (permalink)|
Join Date: Apr 2007
Location: South Seas
welcome to SR nmamarley
by meetings you mean NA?
I'm not a member but I know if you ring the local office (wherever that is in NJ) you can sometimes get lifts arranged?
If, on the other hand, you can't reasonably leave the house, I believe there are online NA meetings around too
I found several hits just by googling 'online meetings na'...it's probably best you check out and find a site you like, if that's your chosen route
good to have you with us
|05-03-2012, 02:21 PM||#3 (permalink)|
Join Date: Apr 2012
I am sorry you are going through this. I was told I had fibro ten years ago, but in my case they were wrong, but I have two good friends who have fibro. Because fibro isn't seen some people don't understand the pain you are feeling. I would encourage you to join with other fibro people and talk about what works.
I know that swimming helps, not swimming laps but just moving in the water and doing light exercise was told to me by the doctor. Massage helps but you must have someone who knows how to work on fibro patients. I know an rx ointiment called Lidocaine works to numb the pain. My good friend finds taking baths help. She takes aleve which does help. There is also non nar. meds that work with fibro that I would talk to your doctor about. Not all insurance companies pay for them, but sometimes doctors can get samples and you can get a discount with the pharm company. Also my friend takes Meloxicam that is a non nar drug too. Celebrex helped me, but I found I have among other things osteo arthritits. The Meloxicam I take too and it does help both of us. She says she feels the difference when she doesn't take it. I can't think of the new fibro non nar. drug you see on tv for fibro, but my friends say it really works.
I hope this helps. I take some of these meds for my pain in my neck and shoulder. You will find you will have good days and then other days where you feel like a train hit you.
My good friend when we both thought we had fibro found the opiate pain pills open to us. They helped with the pain, but the problem was they started to reign our life. She stopped on her own, which I am so proud of her, and is learning to manage it with out heavy pain pills. She says she uses her mind to help deal with the pain. That she isn't going to let her fibro rule her life she is going to rule her fibro. There are some online groups about fibro.
I also remember eating certain foods help too. I am here if you ever want to talk to someone who knows about fibro and has good friends with fibro.
Love and Blessings
|05-07-2012, 11:12 AM||#4 (permalink)|
In my Own Little World
Join Date: Jan 2011
Location: Champaign, IL
I know you haven't posted since last week, but I don't check on this forum too often, even though I deal with chronic pain. I myself have Trigeminal Neuralgia and very severe migraines. One of the meds I am on is a med that is for fibromyalgia primarily, which is Lyrica. I am unsure of the class of meds and am unsure if you have tried it, but at least for the TN, which is misfiring of the nerves (nerves in the face firing rapidly in essence), it has worked an absolute miracle. I've been on it since January. I have as of late stepped my own dose down a touch as I had a mental fogginess that I did not care for, HOWEVER, it's could be because I am on 3 other meds, 1 for my TN and 2 for my migraines as well.
I wish you luck in getting your pain under control as well in getting to whatever meetings you are indeed looking for.
Sober date: January 16, 2011. Looking back only to learn and remember how bad it was.
February 28, 2012, heaven gained a sober angel...and I will always have him in my corner forever, now.
"Happy, joyous, and free."
|The Following User Says Thank You to LotusBlossom For This Useful Post:|| |
|02-16-2013, 01:26 AM||#5 (permalink)|
Join Date: Feb 2013
Location: Ferndale, Wa.
Hi to my fellow sufferer of fybromyalgia
I could really relate to you and appreciate hearing I'm not alone.I also have started to feel worse now that I'm at 5 months.But the advice I have from your site,is giving me more ways to cope.I can't wait until spring is here and to be out more doing enjoyable and spiritual things to keep on keeping on.I too have stopped all narcotics with detox help,and never want to be in the first month again. So I have to remember,it will take time to learn to do this ,and be good to ourselves. I might not be where I want to be, but thank GOD I'm not where I used to be
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