Any other fibros have this?

[lizw]

I think I am going through a flare.
My neck and shoulders are sore as etc..
But I also noticed I am a bit tearful and feel super sensitive.
I.e. am included to cry at 'meaningful' advertising on the TV.

Wondered if anyone else has this?

[DesertEyes]

Yo Liz

I dunno about fibro, but it sure sounds like the stuff I go thru. I have a systemic inflamation of the autonomic nerves (autonomic neuropathy) which is in the same general family as fibro (dysautonomia) so that makes us "cousins"

Anyway, any time I get a flare up my blood sugar goes down and I feel miserable. I'm given various steroids to control the inflamations and one of the side effects of 'roids is to make blood sugar swing up and down. So between the flare up and the meds my mood are a mess.

I get sore in all the places where I've banged up my body over the years. Any joint I've ever dislocated or sprained acts up and hurts.

What I do is do something special for myself to help me get over it, and take lots of extra meds

Mike

[chloes1]

I have fibro as well. I get the bruised feeling along my shoulders and elbows. If I don't manage the pain it wears me down and I cry at the drop of a hat.

Are there meds specifically for fibro in New Zealand? Here in the US we have Lyrica which has been a real blessing for me.

If not you have my sympathy, do hot baths help? Perhaps relaxation exercises might help.

gentle hugs I know it hurts.

[Anna]

Yes, I also have fibro.

My neck, shoulders and back are the most painful areas.

I think that fibro can affect you in many ways. I have difficulty maintaining a consistent temperature so I'm usually too cold or too warm, seldom comfortable.

I have used amitriptyline for many years and it helps. It doesn't do much for the flare-ups though.

[lizw]

Thanks everyone.

Yeah I am having a flare as the pain in my neck and shoulders is coming and going like nobodys business.

Like you Anna I take medication from the same family your med is from but that is just so I can sleep at night. If I don't take it I get chronic insomnia/hot and cold flushes and this bizzare awful grinding sensation in my lower spine. So it doesn't help with a flare.

Last Friday we had a HUGE drop in the temperature, it was sunny in the morning and hailing in the afternoon and I think that is what triggered it. I have also had a bit of emotional stress with my crazy family which doesn't help but is over now.

As far as I am aware there are no meds I can take to kill the pain but hot showers and a heated wheaty bag seem to help.

I think one of my problems is I try to treat it with the AA solution of 'helping others' which I know is mental but I was diagnosed with this at 8 years sober so up till then, when all else failed, I helped others. Lol.

I recognise these days that the solution is to treat myself like I am physically ill (since I am) take it easy, rest and stuff, while it passes. There was also a great reading in the AA daily reader today about it being Gods will we take care of our emotional and physcial health.

It's great to be able to come and here and ask, so do you get this too?
Thanks again.
And a smiley in a wheelchair or broken leg would be good to use too!

[Sugah]

I'm weepy during flares, too, Liz. I teared up the other day watching leaves fall off a tree.

*sigh*

Hope you're feeling better soon.

Peace & Love,
Sugah

[DesertEyes]

Originally Posted by lizw

...I think one of my problems is I try to treat it with the AA solution of 'helping others' which I know is mental but I was diagnosed with this at 8 years sober so up till then, when all else failed, I helped others. Lol....

Nothing wrong with that. Just recognize that "helping others" is only the last half of the last step. The first 11 and a half steps are about making sure that _I_ am in a good enough place so that I am _able_ to help others.

Originally Posted by lizw

...And a smiley in a wheelchair or broken leg would be good to use too!

I like this one

Mike (((( gentle hugs )))

[Lenina]

Yep, weepy with a flare up and the weather changes, especially when it gets cold or damp. Very sore shouders/neck and joints. Very warm baths in epsom salts and meditation tapes help as does getting a little walk. I try to get in 20 minutes daily when I'm home.

I have also used Lyrica and it helped some but not enough to justify the expense as my insurance doesn't cover it.The Lyrica seemed to really help the IBS more than the body aches. I take B6, Calcium and Magnesium at bedtime every night. Gin Seng helps during the day for energy for me.

Hope you're feeling better soon.

Love,

Lenina

[Anna]

I agree with you Liz, the amitriptyline doesn't help at all with flare-ups.

I think it helps a little bit with insomnia, but that's a huge part of my problem. Actually, I was just at my dr a few days ago to discuss the insomnia and she upped my dose from 30 to 50 mg. It doesn't seem to help, but I will give it a try. I find that the pain/insomnia cycle is harder and harder to deal with as I get older.

With flare-ups, I use the showers and wheaty bag also. And, I use Advil, sometimes around the clock, which I don't like doing, but chronic pain is dismal.

[Lenina]

Does anyone else get the painful jaws with the flare-ups? I think I must clench my teeth at times with the pain. I take tylenol for the pain as most other pain relievers don't agree with me. Upset tummy and nausea, usually.

Teeth are fine, no TMJ but I do grind and clench my teeth in sleep. I have a night guard but can't wear it during the day as it makes my speech sound slurred or funny. Any suggestions?

Love,

Lenina

[kissmeimamie]

wow I didn't know there was a specific fibro thread too! this place is great!

[Sugah]

Lenina, this might sound nutty, but when I really need to find a way to get my body to relax and nothing seems to be working, I check to see what's on History Channel, Discovery, PBS or any channel that runs old movies. I'm looking for something that has a mellow narrator. A lot of the NPR shows work well. Then I dim the lights, fluff all my pillows, and focus on the sound of the voices.

Or, guided meditation works well, too. If you google "Buddhist 12 step meditation," I think you'll land on the page of an acquaintance of mine. He has some great stuff. If you have a desk chair that tilts, pop your feet up on the desk, put on some headphones, and stretch out. If it's muscle related, it'll ease the pain.

I think the only area of my body I don't regularly have some sort of discomfort is my earlobes -- and only there because I gave up wearing cheap (but cute!) earrings!

Peace & Love,
Sugah

P.S. Welcome, Amie

[Toomutch]

I get very emotional and foggy with the fibro. I have pain in all the trigger points.

For me a hot bubble bath everyday along with adequate (SP) rest, which I take trazadone and clonazapan for are life savers.

Another thing is a always have a hot water bottle with me - it is very soothing until I get to hot, then I pitch it out of the chair or bed

[lizw]

So is the jaw thing related to fibro? I use to get that but I have false teeth now and that seems to have cured that problem. Sometimes I use to get it so bad I couldn't eat anything. Never knew it was related....

I'm off to the doctors Monday tho under the directions from my sponsor after I told her the toes on my left foot stoped working about a month ago, easily.

I have thought about going before she told me off but because there is not a lot they can do for me except send me to the hospital where they will stick me with pins then give me steriods which make me feel starving. And give me pimples - gross eh?

But I am being a good girl and going. I may be having a MS lapse as I spent Weds in bed feeling really, really sick. Reflecting on that now, I usually only get that bad when I am having a lapse.

[Sugah]

Cold rain + snow coming + long week = yuck.

Peace & Love,
Sugah

[chloes1]

Dit-toe! throw in a toddler and life gets ummmm busy. we've already had fun with the maxi pads, escaped and jumped in mud puddles, and harassed the poor cats. I'm not sure they'll come back anytime soon. Poor things!

Chin up sugah, this too shall pass...

Originally Posted by Sugah

Cold rain + snow coming + long week = yuck.

Peace & Love,
Sugah

[macrojohn]

My wife has fibro, most hits shoulders and arms. She is under the care of doctors, but wants to use medical pot. BAAD idea, because i am an addict. Difficult to work this one out.

[namommy]

I have fibro, and I find that my crybaby time is usually around 5 AM or at night when I am trying to get ready for bed.

Read my thread "5AM...need to whine" I posted it a few days ago when I was having a really bad time.

Actually I'm a bit teary now, and my shoulders have been bothering me all day, but I also have herniated discs in my neck, some days I'm not sure if the pain is the fibro or the herniated discs.

I take methadone and oxycodone for the degenerative spinal disease and other degenerative diseases and cymbalta for depression and fibro pain and clonazapam for anxiety and sleep.

I tried lyrica but it made me hallucinate.

I hate the hot flashes that make me feel nauseas or sometimes make me vomit. sorry to be so gross.

Laurie

[riverboatjohn]

Originally Posted by macrojohn

My wife has fibro, most hits shoulders and arms. She is under the care of doctors, but wants to use medical pot. BAAD idea, because i am an addict. Difficult to work this one out.

Hi Macrojohn,

Sounds like your mixing apples and oranges. I'm an alcoholic & addict, I live with chronic to acute pain everyday. For me the only solution is to work my recovery program. Drugs/alcohol are everywhere, that's one of the facts of life. Does it matter what she uses for pain? If her and her doctor feel that marijuana would help then that's her decision. Would you get in to her opiates or any of her other medications?

Peace

[grateful2b]

I am in the middle of a flare
I have pain in every trigger point, I am just one big bruise right now...lol..and fibro fog, and I have noticed my muscles in my arms and legs have given out separately the odd time...here and there...very sensitive emotionally...unsteady on my feet in the morning...I use Trazadone for sleep otherwise I'd be in a flare all the time.
I take things slow, hot baths(lots), hot wraps, A535, acetaminophen, lots of rest...no stress of any kind..the key for me is too stay warm and stay relaxed and let my body heal....and T1's when I am really desperate.
I was taking magnesium along with Malic acid, B12 and coq10, glucosamine, chondroitin for pain and fatigue, and ginkgo bilboa(ffog) but stopped (Money thing) and am just taking magnesium/calcium combo for my osteoarthritis.. but I need to and will get back on this regimen!...

[namommy]

I got myself really stressed out today, aggravated over my wireless plan not honoring the insurance I bought for the phone. anyway, after 2 hours of obsessively calling customer service, the dealer, the insurance company, the manufacturer, e-mailing their investor and media relations departments, and the Better Business Bureau and screaming a few choice words at the rudest sales person I've ever met, I am so tensed up and in so much pain I can't stand it. I can't stop shaking, my neck and shoulders are killing me and my legs are throbbing.

I woke up feeling so good this morning and got so much accomplished, then this happens. ugh.

[grateful2b]

oh, ouch, namommy...
I hope you feel better soon

[namommy]

The weather around here has been horrible. We had a heat wave a while back which got the ball rolling. the heat wave set off thunderstorms, that created 3 or 4 days of chilly, drizzly rain with downpours mixed in, the 1, maybe 2 hot, humid days, kicking off the thunderstorms, followed by the chilly stuff again. This has been going on for so long, that I feel like building an ark.

Anyway, this all over the place, unpredictable weather has my fibro and my other pain issues off the scale. I have spent the majority of some days in bed almost all day, and either way, if I am up or in bed, I am in pain.

I wish the weather would settle down, then hopefully my body will settle down.

thanks for letting me b*tch

[grateful2b]

oh boy, that is the truth..namommy
I have been in a flare for a couple of weeks, but the last two days is the worst my fibro has ever been, that hold you breath, every five seconds, kind of pain...
it had been overcast and cool and damp...the wost kind....but in the early evening, I, all of a sudden, felt what seems like 80 % of my pain, literally drain out of my body from the head down....just like that, in a matter of seconds....I was giddy with relief!
barometric pressure, I am sure....
I mistakenly told a friend :atmospheric pressure thinking I was saying barometric pressure(FFog)..lol..
I have felt this shift in my pain before from the barometric pressure falling, but never so powerfully....still have a lot of pain but no longer feel like one mass of inflammation....I'll take that

[Sugah]

Peace & Love,
Sugah