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| | #1 (permalink) |
| Paused Join Date: Aug 2002 Location: oregon
Posts: 67
| havent slept in 2 days
This manic phase is almost making me crazy this month i am getting irrated a person can only drink so much coffee and stuff part of it is there is a good side to it at least all my bills are paid ... and that is a plus ... for now i have a child who is recoverying from surgery on tuesday who does not understand what happened to him due to his developemental disabliities so he is having a hard time right now and is waking up at all times of day and nite right now which is making me have no sleep due to worry and wanting to make sure he is safe hard to be a single mom thanks for ur support |
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| | #2 (permalink) |
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Mistee, I'm sorry you're having a tough time. How old is your son? It is hard being a single mom. I raised my kids alone too. I remember those sleepless nights wishing I had someone to help me. You'll get through this. I was in a bad mental state with PTSD when my kids were young too. What is your son's diagnosis? I have a niece with down syndrome. Hugs, MG |
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| | #3 (permalink) |
| Sharing Our Light Join Date: Mar 2002 Location: By The Lake
Posts: 18,176
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Hi Misty Do the best you can to get some rest. Even for those of us not struggling with your disability can lose our balance very easily if we do not get enough sleep. My prayers are with you and your son. May God give you the strength and special blessings you need to get you through this.
__________________ Somewhere between the gator swamp and the Taj Mahal there is a path, it may be hidden, overgrown or may blend in with the other surroundings, but it is there, it's your path and it is calling you.~Frankly~ |
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| | #4 (permalink) |
| Paused Join Date: Aug 2002 Location: oregon
Posts: 67
| son had surgery but have been manic
i finally was able to get some sleep today that was a blessing and well needed to ....... i dont feel so tired anymore and irrated at the world anymore like i was feeling anymore. MG about your question about my sons diagnosed right now at this time. I basically know this that he is developementally disabled and he has a slight hearing loss in his ears too but he had tubes in his ears this week and his tonsils and adnoids taken out too..he will be tested in the fall soon to find out if he is autitic he has alot of the traits of autistism just by some of the sites i have been looking at and talking to my therapist too him about my son to. he is really good at some things but doesnt seem to understand some things at all so i have been working with him the best i can i also have the state involved in my life due to him getting out with out my knowledge a few times and taking off he doesnt know it is unsafe to do this no matter how much i try to tell him that it is not safe i have installed those plastic door knob things on the doors to his room he took it off the first nite i used it the next nite i had to go purchase more locks and put them up higher and we live in 24 hour lockdown at my home to keep him safe the state thinks i am being neglectful but now since he has done this i am in constant state of worry and fear for him getting out of the house the next time could be him getting hit by a car and killed or someone kidnapping him or the state taking him .... so i am on constant watch of him even if i have to set an alarm clock to go check on him too so it is like this either stay up and nap when he does or sleep whenever i get the chance to thanks it has been kind of hard on me but seeking the solution and working with the state to the best of my ability so i can keep my son at home and prove to them i am a fit and loving caring mom mistee |
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| | #5 (permalink) |
| Sharing Our Light Join Date: Mar 2002 Location: By The Lake
Posts: 18,176
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Mistee You certainly sound like a caring parent to me, and how "fit" would any of us be under these circumstances? I believe there are support groups for parents of autistic children (if this does end up being the diagnosis), and finding this group may help you share your burden and learn new skills at handling the safety issues and emotional wear-downs. I will see if I can find the website and will post it here for you. You do not have to go through this alone. We are always here for you. MG is the more informed person here, but I will drop by to offer hugs and support. You made the first big step by reaching out for help. And that is a wonderful start. {{{{{Mistee}}}} P.S. Okay I found a couple that look like they may help and they are from Oregon, which I believe is your state. Click on these: www.autism-oasis.org www.autismtraining.com Hope this helps a little.
__________________ Somewhere between the gator swamp and the Taj Mahal there is a path, it may be hidden, overgrown or may blend in with the other surroundings, but it is there, it's your path and it is calling you.~Frankly~ Last edited by Ann; 08-31-2002 at 08:05 AM. |
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| | #6 (permalink) |
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Mistee, Our state offers respite care so that parents can have a time away from their disabled child. I think you need a break. I'll look for some information for you too. It doesn't sound like you are getting the support you need. We also have other services that would come in and help you too. If you lived in California I could send all kinds of help. I'm just not sure about Oregon. I will look into it though. Hugs, MG |
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| | #7 (permalink) |
| Grace Under Fire Join Date: May 2002 Location: Another world
Posts: 539
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Mistee, My step-grandchild is autistic. He goes to a learning disabled school which gives the mother relief. How old is your son, and do you have any family nearby for support? I wish they could test him sooner, so they could get the wheels in motion for you and your son-there is medication also that will help, (if this is the case.) My prayers are with you, I hope you are getting some rest and feeling better. Hugs,
__________________ Josie |
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| | #8 (permalink) |
| Paused Join Date: Aug 2002 Location: oregon
Posts: 67
| age of son
my son's age is almost 3 with the early intervention team i have been working with since january they say that the sooniest we can is sept early oct for testing unless there is a miracle of somekind he will start preschool after his birthday i am having him get all his shots updated next week so that he might be able to start sooner my family is not in the same city i live in either so it is hard i do i have a teen daughter who tries to help me too but she has bipolar disorder too and she has her trouble with the law too. i work with scf which is childrens services even when they threaten to take him from me i smile and say i need help with him and to teach him right and wrong and that i should not be punchned for having a disabled child or have threats from them if i cant keep him safe that they are going to take him it just makes my bipolar worse too. anyway i have signed all the paper work needed to get him tested it is just a matter of time to get him tested plus he just had surgery this week too for having tubes put in his ears and tonsils adnoids and his tongue clipped too so he is on the way medically to the road of his own recovery trying to keep a little one down at 3 is a hard job itself thanks all for ur replys keep suggestions and comments coming i am open for all of them xoxox mistee |
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