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I agree with everything Sugah said, especially the part about not letting it define one.
I was diagnosed in 1991, I think it was. I was lucky to have a good doctor! I found that taking narcotics for the pain seemed to make it worse. Getting out for a gentle walk and some sunlight helps me so much. Also, meditating and self-hypnosis helps with the pain, the attitude and just generally makes me feel better.
I also take 1000 mgs of calcium, 100 mgs of B6 and 100 mgs of magnesium at bedtime. Even though I don't sleep much the quality of sleep seems to be better. I tried Lyrica and it didn't do much. Also, eating small meals throughout the day rather than big ones three times a day works too.
I take advil and warm baths with epsom salts when a flare up starts. Also Ging Seng for energy.
I hope you're feeling better. It is possible! I feel better now than I ever thought possible.
Love,
Lenina
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